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WHAT IS EPILEPSY
This book is about epilepsy. Perhaps you are reading it because you have epilepsy yourself, or because a friend or family member has developed it. If you have just discovered that epilepsy affects someone close to you, you may feel very apprehensive about what the future holds. Epilepsy can seem frightening to anyone who knows little about it but I hope that this book will show you that it need not either rule or ruin your life. People who have epilepsy are ordinary people who lead ordinary lives. This is how one such person first discovered that she had epilepsy:
Jennifer was a normal, healthy young woman enjoying her first year away at college. Enjoying it so much, she had to admit, that studying had not been a real priority and her first year exams that week had been rather stressful. Still, they were over, and now she could relax. She had been up most of the night dancing at an end of term ball, and now, with her boyfriend Michael, she was walking to a pleasant riverside pub to meet some friends for lunch.
Suddenly she was overcome by the weirdest feeling. She wasn’t sure that she could stand and had to sit down. ‘What’s the matter Are you OK ‘Michael asked, but Jennifer couldn’t explain what the matter was. ‘I just feel really funny,’ was the best she could do. ‘It’s hot and you’re tired and probably hungover. No pub lunch for youI’m taking you home,’ Michael said firmly. ‘Have an early night and we’ll see how you are tomorrow.
‘The next day Jennifer still felt exhausted and didn’t want to go out. But then she seemed to recover and as it was near the end of term and she had no more ‘funny turns’ she forgot about it.
It was about two months later, when she was home from college on vacation, that she had her first big attack. It was late, she was very tired but decided to make herself a cup of tea before going to bed. She was sitting on a kitchen stool drinking her tea when she suddenly felt herself falling backwards. She heard a crash and then nothing more until she recovered consciousness on the floor with her mother bending over her.
Jennifer’s terrified parents called an ambulance and in the hospital emergency department Jennifer was told that she had had a seizure. There was no need to keep her in, the casualty officer told them, but Jennifer should make an appointment with her GP who would explain everything to them. Jennifer felt almost too shocked to speak, but she managed to ask the casualty officer the question which was uppermost in her mind. ‘Of course you won’t have to leave University, ‘he reassured her. ‘Probably you’ll have to take medication to stop any more seizures. But I can see no reason why you shouldn’t go back to college next term and finish your course.’
Epilepsy is one of the oldest disorders known to man and, until very recently, it was one of the most misunderstood. Imagine a friend, someone you know to be normal and sane, suddenly falling down in front of you, jerking in a terrifying way and then lying as still as death. And if you found this frightening, how would you feel when, as if by some miracle, they seemed to arise from the dead, in full possession of their senses once more and apparently none the worse for what had happened It is easy to understand why the ancient Greeks called epilepsy the ‘sacred disease’, and why in biblical times someone having an epileptic fit was thought to be possessed by the devil.
Hippocrates himself was one of the first people to try to change people’s attitudes towards epilepsy. He recognized that damage on one side of the brain caused convulsions which started on the opposite side of the body and tried to persuade people that the disorder was due to natural rather than supernatural causes. Unfortunately science, as so often happens, proved less attractive than superstition. Epilepsy retained the power both to frighten and to mystify. There were no real advances either in the understanding of epilepsy or in its treatment until near the end of the nineteenth century, and myths and misconceptions about the disorder continued to plague sufferers until almost the present day.
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