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Other names: Phenytek Er
Dilantin (Phenytoin)
WHAT IS EPILEPSY
People with epilepsy lose control of their body, usually with complete or partial loss of consciousness, at various unexpected times. In other words, they may make movements without consciously wishing to do so and often without being aware of what is happening. This loss of conscious control may be referred to as an ‘absence’, ‘blackout’, ‘convulsion’, ‘turn’, ‘seizure’ or ‘fit’. The most commonly used terms are seizure, convulsion or fit. All these terms mean the same, although seizure is currently the preferred term.
An epileptic fit is due to an abnormal discharge of electrical activity produced by the nerve cells in the brain. This in turn produces an abnormal movement, sensation or thought process which is apparent to the sufferer or an onlooker, and sometimes to both.
The frequency of fits reflects the severity of the epilepsy. This is no different to anyone with a chronic condition such as asthma. People who have lots of attacks of asthma have severe asthma whilst those who have only one or two episodes have it very mildly. Somehow this seems to be viewed differently for epilepsy; certainly, the general public has difficulty in grasping the fact that there are many different types of epilepsy and also that It comes in various degrees of severity. This is made more confusing by the fact that most people with epilepsy are quite normal for the vast majority of the time Seizures differ from person to person: they range from being almost unnoticeable with the patient being ‘absent’ for a few seconds to seizures where the person may fall to the ground and jerk the arms and legs. Some people have frequent seizures and need to be on medication regularly, while others may have only two or three convulsions in their whole lives.
About 80% of epilepsy will begin before the age of 20 years, and approximately 6% of children will have a fit at some time or other during childhood. The majority of these fits are related to fever (febrile convulsions) and are not associated with epilepsy as such. It is important to remember that a single fit does not imply a diagnosis of epilepsy – by definition, epilepsy implies a tendency to recurrent seizures.
Sadly, the diagnosis of epilepsy is often associated by patients and parents with a feeling that ‘the end of the world’ is at hand. This is not the case. Most people with epilepsy lead normal, productive lives. Even in the more serious types of epilepsy a great deal can be done to limit the consequences. Epilepsy in itself does not cause a person to be backward; persons with epilepsy are as intelligent as other people, although a small number may have some degree of brain damage which causes mental retardation as well as the fits. There may be some children who have learning problems and sometimes the medications used to treat epilepsy (anticonvulsants) may be sedating. These factors are discussed later on.
When persons with epilepsy congregate, there is often discussion about two sensitive issues: are they people with epilepsy or are they epileptic, and is epilepsy a disease or not Having heard this discussion on many occasions, my own views have changed over the past few years. The reason for the discussion is the stigma of epilepsy. There is no stigma attached to having asthma, diabetes or arthritis. If you are confronted by someone who is wheezing or having trouble cutting their food because of painful joints, you feel sorry for them. On the other hand if you see someone having a major fit, the natural reaction is one of fear and withdrawal. There may be sympathy for the sufferer but this is clouded by other emotions. As a response to this, epileptics prefer to call themselves ‘a person with epilepsy’. They don’t like to say that they have a ‘disease’, not even a
‘condition’. Previously I subscribed to the view that “Epilepsy is a phenomenon – it scarcely warrants being called a symptom and it is not a disease.”
This reaction is understandable, but it may be counterproductive. The reason for wishing to hide one’s epilepsy is because of public apprehension and stigma. However, by hiding it, society will never become attuned to, or accept, epilepsy. The very real risk of not ‘standing up and being counted’ is a perpetuation of the present situation. The choice ultimately lies with those who have epilepsy, whom I shall call epileptics, as people with asthma call themselves asthmatics and those with diabetes, diabetics. They are not ashamed of their disease or condition, although they would prefer not to have it. Having it is not of their doing. We all have problems in life; some of us are fat, others are less attractive than others and some people are brighter than others. We live with these limitations. For most epileptics, having epilepsy should be seen as an inconvenience which needs to be encompassed in a normal lifestyle, not as a life sentence to something terrible.
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October 15, 2009 Post Under Epilepsy - Read More
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